In just 6 days Connor will be setting off on this 10 day epic adventure. We plan to keep you up to date over the journey with Connor’s progress. So keep your eyes here to see how he is getting on over the next couple of weeks and please donate what you can to this brilliant cause.
Charity skate from pier to pier
When Connor was 5 months old he was admitted to Great Ormond Street Hospital with a large tumour protruding behind his left eye and out of the side of his skull. Connor was admitted into this incredible hospital, with an unknown diagnosis. After a week, he was found to have a very rare disease known as LCH (Langerhans Cell Histiocytosis). Connor was extremely lucky to have been treated under the care of Dr John Pritchard, who was a specialist in this disease. After a few weeks of treatment, which was not working Connor was readmitted to GOSH and referred to Miss Russell-Eggitt, one of the Ophthalmic surgeons. Her words to Connor’s parents before the surgery were ‘I have spoken with a colleague, who did something similar 16 years ago’, but they put their faith in the Team and the treatment worked. Connor’s had to have regular check ups and when he was six years old he was formally discharged.
Oddballs, also known as Longboards UK and Madrid, have supplied Connor with a new longboard, designed for the long distance journey Connor is facing. Juice 107.2 and The Argus have interviewed Connor on several occasions about the longboarding project. Vektor, a printing company from Burgess Hill, have been a huge help towards Connors charity project, creating a new and professional website for the project, along with printing T-shirts for the journey and flyers for publicity.
You can donate to Longboard For Life via the website: www.longboardforlife.co.uk, or you can donate via PayPal, or the Just Giving page. Or donate via JustTextGiving, simply text SMIF95 and the amount you would like to donate, to 70070. For more details about Connor’s charity project, check on the website, where there are also links to the Twitter feed and Facebook page.